We spent 4 days in the hospital this time and Mushroom had the GI button placed, an MRI on his brain and spine, and a scope. Results of these will be in a forthcoming post.
This is Mushroom before he was taken back for surgery. He is already zoning and about to fall asleep.
This is Mushroom once he was back in the room and just waking up, still happy on pain meds.
This is Mushroom crashed after a long night of nurses coming in and out... the morphine has once again kicked in...
This is what we had to put in to that sweet little belly thanks to several years of indifference/starving and feeding him what he was allergic to. Because of this, he has grown an aversion to eating anything and so the only way to get nutrients into him is through a tube. Thank you, Shepard's Field, for allowing him to waste away to nothing while turning a blind (and not so blind eye) to this.
We are now home and have mastered the GI feedings. His ezcema has evened out and he is up to 17 pounds. We are passing our days with home PT and OT and driving back and forth to doctor appointments. We are currently waiting on insurance to give the okay for home health care PT, OT and Speech therapy.
Below is a reminder of what he looked like when we got him the first week of December. This picture was taken almost a week after we had received him and put the feeding tube into his nose.
Praying for your sweet boy! So glad to see an update on him. :)
ReplyDeleteWhat a beautiful boy! I've just begun to follow your blog and I can't believe the change in him. Not only physical but you can see an awareness, a calmness in his eyes that just wasn't as strong before. God bless you, and this wonderful little boy. Can't wait to see him being rowdy and doing all kinds of messy boy stuff!
ReplyDeleteHugs and prayers,
Amanda
Continuing to pray for you all. Thanks for keeping us updated. I can't wait to see how God uses this little guy in your life and the lives of others all around the world. Blessings!
ReplyDeletePrayers for continued progress - thanks for the update!
ReplyDeletehugs - aus and co.
Praying for all of you! My son also had a severe aversion to food due to a medical condition & he didn't eat for the first two years of his life, but we were able to teach him to eat with so much help from the book "Poor Eaters: Helping Children who refuse to Eat." we were able to do almost all of our feeding therapies at home.
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